Welcome to Holland

I really wish there were no judgmental people in this world, but there are.  Autism is a condition which is difficult for many to understand and, once again, our family has experienced ignorance. This post is to all of the people that have seen and judged my daughter lately - a six year old child sitting in a jogging stroller whining and crying, yelling and screaming, kicking her feet, repeatedly pulling the visor down and demanding things. This is what YOU see. You might think "What a spoiled brat!" or "She's too big for that stroller." She isn't doing it to get her way. This is Autism. Let me explain... She rides in a stroller because it's the safest place for her. Crowded, fast-paced and noisy environments cause her anxiety, which triggers a sensory overload and she tries to flee. She also has Joint Hypermobilty Syndrome   that makes her to become very tired and causes pain in her joints.   Although she tries very hard to conform anywhere sh...

 It was a Monday, one of those days where you sit down around 3pm and say to yourself "Well, that  wasn't so bad.." as you knock on some wood before you jinx it! Except I must of knocked on some fiberboard or somthing plastic with grained contacted paper on it, because that's around the time everything changed.   It was Hulk's first Monday night wrestling practice, normally it's on Tuesday. Mr. Holland would be taking him after dinner. Everyone sat down and started eating, Doc asked her normal question "Can I have something else?" and we gave her toast with butter, her usual. Hey.. we tried, right?  After Mr. H was done eating he started getting ready to leave. Hulk ran up and down the stairs a few time to get what he needed, because one trip is not his thing. In the middle of all of this Doc had secretly gotten ready and was waiting in the mud room. During the day I had explained to her that daddy was taking Hulk tonight so I could stay h...

Sorry it's been a while since I did a blog entry. On Jan 14th of this year, Doc was officially diagnosed ASD level 1 (equivalent of what they used to call Asperger's). She was evaluated for speech (social) and Early Intervention, but neither of them saw anything at the time. These evals are done one-on-one with an adult in a quiet room. She works well in this situation and will mask her ASD quite well. She did receive PT for Hypermobility Syndrome for a few months. We have been working on getting a case manager and a BHP in place for home. Tonight during wrestling practice for our boys I saw a glimpse of how hard socializing is for Doc with her peers. There were two little girls a little older than Doc. All three were playing, running around. "Let's all do this! Ok, now we're going to do this." Doc tends to come off as bossy and rude. The girls followed her "rules" till they had had enough and walked off together leaving Doc alone. There were plen...

This poem was written in 2008 by Cindy Waeltermann, who is the founder of the organization  Autism Link .  I just discovered it today on facebook ... Though many of you might like it... Twas the Night Before Christmas And all through the house The creatures were stirring Yes, even the mouse We tried melatonin And gave a hot bath But the holiday jitters They always distract The children were finally All nestled in bed When nightmares of terror Ran through my OWN head Did I get the right gift The right color And style Would there be a tantrum Or even, maybe, a smile? Our relatives come But they don't understand The pleasure she gets Just from flapping her hands. “They need discipline,” they say “Just a well-needed smack, You must learn to parent…” And on goes the attack We smile and nod Because we know deep inside The argument is moot Let them all take a side We know what it’s like To live with the spectrum The struggles and t...

Waiting on lists for  assessments,  specialists  and the official diagnosis. Waiting for insurance companies to except and then waiting for the services start. Waiting for words, just a few.  Waiting for those amazing moments that your child presents to you as a gift, like saying "I love you!"or when they give you a hug.  Waiting in traffic on the way home from therapies at least once a week.  Waiting to celebrate that your home is now diaper free, our day will come.  Waiting for your child to feel comfortable in their own environment or at least in their own skin.   Waiting for a meltdown to subside, wishing you could fix or understand what caused it.  Waiting for the storm to pass or better yet..learning to dance in it. Waiting for your child to engage and make a true friend.  Waiting for your child to ...

         For the past week I have been trying to keep my mind off the results of Doc's evaluation, still waiting for the phone call.      I have been working on some ideas for the new sensory/therapy room. S ensory bins are wonderful hands on fun for many ages including toddlers and preschoolers! Many skills can be learned and explored through sensory bin play including social and emotional communication, literacy, fine motor skills, and more! Sensory bins provide an outlet for children to engage in a meaningful way and also receive sensory input that their little minds and bodies crave.     Exploring through touch and feel can be a positive experience for most children. Sensory input from sensory bins works with your child's nervous system. Some fillers may be preferable to others, so don't give up trying! Let your child be your guide!  Use a sensory bin to talk with your child about what he or she is sensing! Great com...